Advancing Health Priorities that Matter to the IDD Community: Learnings and Future Directions

Days in the community, or “home time,” is considered a patient-centered outcome measure reflecting clinical events that impact quality of life and patient preferences. However, it is also important to consider whether someone lives in their home of choice and has what they need to be healthy and safe. Including perspectives of the intellectual and other developmental disabilities (IDD) community is essential to understanding how the concept of “home” and "home time" aligns with health priorities, particularly as they age. This webinar will share learnings from the IDD community about health outcomes that matter to them and feature a panel with state and disability experts to explore opportunities to center the voices of the disability community in policy and co-create patient-centered outcome measures.

This webinar is part of a project, "Engaging Adults with Intellectual and Developmental Disabilities to Inform a Patient-Centered 'Home Time' Outcome," funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EASCS-35236).